Rep. Moore offered the following resolution:
House Resolution No. 390.
A resolution designating June 21, 2008, as Tuberous Sclerosis Awareness Day in the state of Michigan.
Whereas, It is important to increase awareness of Tuberous
Sclerosis Complex (TSC) and support programs to increase research and improve
treatment of Tuberous Sclerosis. It is also vital to improve training and
support for individuals with Tuberous Sclerosis and those who care for
individuals with Tuberous Sclerosis; and
Whereas, The Tuberous Sclerosis Alliance is the only national
voluntary health organization dedicated to finding a cure for TSC and improving
the lives of those affected through research, support, and education; and
Whereas, TSC affects an estimated 1 in very 6,000 live births in
America; and
Whereas, TSC affects some people severely, while others are so
mildly affected that it often goes undiagnosed; and
Whereas, People with TSC often develop epilepsy and autism.
In fact, TSC is one of the leading known genetic causes of epilepsy and autism.
Many other individuals encounter behavioral and learning problems.
Despite this, many professionals in the medical and educational fields are
still unaware of the best methods to diagnose and treat TSC; and
Whereas, The Tuberous Sclerosis Alliance of Michigan is hosting an
opportunity to create awareness of Tuberous Sclerosis and raise funds for
research programs and services titled “Step Forward to Cure Tuberous Sclerosis”
on June 21, 2008; now, therefore, be it
Resolved by the House of Representatives, That the members of this
legislative body designate June 21, 2008, as Tuberous Sclerosis Awareness Day
in the state of Michigan. We recognize and commend the families and
individuals affected by TSC for their sacrifice and dedication in dealing with
this devastating condition. We commend them for providing the special
needs of both children and adults with TSC and for absorbing significant
financial costs for treatment and support services; and be it further
Resolved, That we stress the need to begin early intervention
services soon after a child has been diagnosed with TSC. Early
intervention strategies are the primary therapeutic options for young people
with TSC, and early intervention significantly improves outcomes for people
with TSC. Early intervention can reduce the level of funding and services
needed later in life.